The idea of our community creating information for our medical providers is profound and absolutely brilliant! Thank you for thinking of this, for taking on such a big project, and for caring the way you do.
Also, I would love to help analyze the data alongside you. Just let me know how I can help.
aw thank you for the kind words! and thank you for all you do for our communities!!
omg that's amazing! thank you! i need to write up a game plan for the analysis and i will be in touch! (tbh i'm about to go on a vacation so i probably will be ready to check back in around late august/early sept at the earliest)
No worries. I'm neck-deep in my own projects, but this matters, and I would love nothing more than to contribute what I can. I will be here when you are ready!
I completed the survey, even though it was much later than originally intended. I hope that’s acceptable. I included many ideas I’ve been reflecting on for a while. I wholeheartedly agree that action is necessary.
Due to my extensive medical issues, I spend a significant amount of time in doctors' offices, clinics, oncology centers, with specialists, and even in emergency rooms and hospitals. This frequent exposure has given me firsthand insight into just how misinformed many providers and "professionals" can be, as well as how strongly opinionated they are about these inaccuracies. It’s both disappointing and disheartening.
For years, I’ve wanted to take action because I stand at the intersection of two key realizations: first, much of the hatred, fear, and judgment that exists could begin to fade if people were better informed and equipped with the actual truth. Second, when individuals are shown how easily change can happen, it inspires hope and progress.
hi relic, thanks so much for sharing your experiences and insights. it's definitely not too late! i am going to keep the survey open through the end of december to increase the number of respondents and to work on the analysis once my schedule clears up. so please share with your friends and networks to expand the survey's power!
i really appreciate your dedication to this important issue! i've heard from so many people who have similar experiences to yours and i hope that this project will be a small contribution to badly needed progress in this area 💜
This is why representation in these spaces matters! I have a lesbian PCP. The lack of questions about why and the amount of willingness to listen about concerns I have without questioning me why is the reason I keep going back. Its not about me google diagnosing myself. It’s about allowing me to advocate for myself and help me within reason to that end while protecting me from harm by just blindly writing me prescriptions for junk.
I just came across your Substack recently, so I'm coming to this very late, but hopefully my response can still be used! This is a really great project that is much-needed, and I think it will help a lot of queer/trans people to have better medical experiences in the future. Thank you for doing this!
your response can still be used! i extended the window the survey is open to get more responses (and buy time for me to put together an analysis plan). i will close the survey when we are no longer taking additional responses. thank you for contributing!
The idea of our community creating information for our medical providers is profound and absolutely brilliant! Thank you for thinking of this, for taking on such a big project, and for caring the way you do.
Also, I would love to help analyze the data alongside you. Just let me know how I can help.
aw thank you for the kind words! and thank you for all you do for our communities!!
omg that's amazing! thank you! i need to write up a game plan for the analysis and i will be in touch! (tbh i'm about to go on a vacation so i probably will be ready to check back in around late august/early sept at the earliest)
No worries. I'm neck-deep in my own projects, but this matters, and I would love nothing more than to contribute what I can. I will be here when you are ready!
thank you!! 💜
I completed the survey, even though it was much later than originally intended. I hope that’s acceptable. I included many ideas I’ve been reflecting on for a while. I wholeheartedly agree that action is necessary.
Due to my extensive medical issues, I spend a significant amount of time in doctors' offices, clinics, oncology centers, with specialists, and even in emergency rooms and hospitals. This frequent exposure has given me firsthand insight into just how misinformed many providers and "professionals" can be, as well as how strongly opinionated they are about these inaccuracies. It’s both disappointing and disheartening.
For years, I’ve wanted to take action because I stand at the intersection of two key realizations: first, much of the hatred, fear, and judgment that exists could begin to fade if people were better informed and equipped with the actual truth. Second, when individuals are shown how easily change can happen, it inspires hope and progress.
hi relic, thanks so much for sharing your experiences and insights. it's definitely not too late! i am going to keep the survey open through the end of december to increase the number of respondents and to work on the analysis once my schedule clears up. so please share with your friends and networks to expand the survey's power!
i really appreciate your dedication to this important issue! i've heard from so many people who have similar experiences to yours and i hope that this project will be a small contribution to badly needed progress in this area 💜
This is why representation in these spaces matters! I have a lesbian PCP. The lack of questions about why and the amount of willingness to listen about concerns I have without questioning me why is the reason I keep going back. Its not about me google diagnosing myself. It’s about allowing me to advocate for myself and help me within reason to that end while protecting me from harm by just blindly writing me prescriptions for junk.
yes representation is a big part of the problem! and the culture of not believing patients
Thank you for doing this!! 🔥✊🏻💜
Hi! I’m not in the US, can I still participate/share with people around me?
yes!! there is question for country where you receive medical care
Good idea!
Do you want parents to fil it in on behalf of our kids or not?
yes! that's totally ok. could you just include in the gender identity response that the response is in reference to kids!
Sure thanks
This is a great idea. Thank you!
I just came across your Substack recently, so I'm coming to this very late, but hopefully my response can still be used! This is a really great project that is much-needed, and I think it will help a lot of queer/trans people to have better medical experiences in the future. Thank you for doing this!
your response can still be used! i extended the window the survey is open to get more responses (and buy time for me to put together an analysis plan). i will close the survey when we are no longer taking additional responses. thank you for contributing!